Friday, December 15, 2006
Update On K.C.
K.C. is o.k. today. He had a seizure the very next day after we noticed eye rolling and long staring spells. Thank God there are some signs with K.C. It is very frightening to see him have a seizure, waiting for the seizure to end seems like forever. The long spacy staring looks are my number 1 signal that a seizure may happen. When K.C. does have a seizure he always loses control of his bowels and always has a messy diaper afterwards. He gets super sleepy afterwards and sleeps a good three hours. I always feel that after a seizure we take two steps back. It takes a toll on his little brain. We have kept the seizures at bay for the longest time. I don't know what we have done differently to trigger this seizure. Maybe it was too much stimulus. We just don't know. K.C. has had EEG in the past which was very, very, hard to complete. Attaching those electrodes on his head was extremely difficult. He kept pulling them off. A nurse came with a pinwheel and we were able to get them attached while he watched the pinwheel. It came back abnormal and showed that he was having small seizures. The small became large. Now we just have to watch for signs of a seizure, give him medication and let his body have the seizure if it happens and not try to hold him still, just keep him safe.
Hanukkah is here. I have been so worried about K.C. I haven't prepared for the boys. I am trying to catch up today. Can you believe I have no candles for the Menorah? Finding them will be another tough thing. My mother came to our house today with Adam (my brother) and brought her story books. I love reading to the boys, Big Brother loves the stories and K.C. listens, just listens in his own way. He always walks around when I read, but he does stick around. I think he listens. K.C. loves to see the Dreidel spin and really likes to watch us light the Menorah. My Parents and little brother will be coming to our house tonight because K.C. hasn't been well. Big Brother is excited and has been singing Maoz Tzur all morning. I am scattered brain today- completely scatterbrained. I am so thankful my Parents are coming to help out with the boys. K.C. usually hides when they come, but once he sees they are staying for awhile he'll come out. Adam will follow me throughout the house tonight, it will be so nice to spend time with him as well. I love reading about Yehudit and the Greeks. If you have a chance, you must read about her. She was a very brave woman.