Tuesday, October 28, 2008
Updates (UP!) Bragging..
It's been awhile since I last wrote and finally have time to sit down and write a little bit about the boys. K.C., my youngest little boy who has Autism (for any new readers who may not know) is doing very well. He is in a very good program at school and comes home happy almost everyday. He had been sick with Asthma and the school nurse called saying she needed his tubing so she could give him a treatment. I left his tubes at school and kept some at home. He's doing much better now. Sometimes the air quality is just so icky out there.
His teacher says he's doing quite well at school and he is going to be working on tracing horizontal and vertical lines in hopes that he will soon be tracing his own name soon. At K.C.'s school during lunch time, 6 students, this includes K.C. sit down and eat together. We have been working very hard on daily living skills and it is so paying off. He now sits at the table WITH people and eats! Can you believe it? Not too many months ago this little boy couldn't even sit at the table with his Big Brother. He would grab at Big Brothers plate and throw it, scream and was just not a happy little boy. He also will take his plate or bowl to the SINK and put it in when he's finished without being asked too. This didn't happen overnight though, I really believe that the school he is now is a major factor. He's learning when he's happy.
His teacher reported that K.C.'s class has been going to music class with the
regular ed students! Each child has an aide with him the whole time, always within reach. So far K.C. is doing great! My little boy is participating with a regular class! On the way back from music class his teacher says K.C. wants to touch each classroom door or open it, the classes have students in them and his teacher has to tell him, "no." He gets angry so his teacher called me yesterday and said that from now on when K.C. walks back from music class she will give him something to carry that requires both hands so he can't touch or open doors. I thought it was a very good idea. Knowing K.C, he won't put whatever it is that he is holding down and he might keep walking. Headbanging has been rare (I hope I didn't jinx myself) and I pray that they stop altogether but realize that they also might not stop and appreciate the good times even more. His Adaptive P.E. coach said she has been working with K.C. on the word, "freeze!" If K.C. can learn this word each time someone places their hands on his shoulders when he hears the word "freeze" it would be so helpful to me! I can think of alot of situations that word would come in handy! She also is working on running with K.C. K.C. doesn't run and I am not sure he even knows how too but we are working on it. Eating has been an issue. He eats alot of the same food and I mean alot. I am going to try to cut back on how much he is eating because it's all carbs and it's like a food addiction to him. He is now 92 pounds at 7 years old. I have to do something about it now or he'll just continue to gain. If anyone has any ideas on how to get K.C. away from carbs that he is so addicted too please pass on the info. Seriously he is addicted to carbs and eats so much that he throws up. I try to stop him from eating so often and boy does he get mad. I usually give in to him because I don't want to see him head bang and hurt himself. The teacher says he still eats mostly with his hands and uses a spoon or fork only sometimes. He can use a spoon and a fork but he's not very good at it and prefers to use his hands. He's trying very hard and I am so proud of him.
I have some very exciting news. Last night Big Brother and I was going through some videos of the kids playing at the park. I noticed that in one video as K.C. was climbing to go up to go down a slide I swear I heard him say, "up!" Now I have proof cause I caught it on tape. I keep asking myself, did her really say, "up?" I'd like to know what you all think, please listen to the video as he goes up the slide and see if you can tell if he is saying a word or just babbling. K.C. has said "Mama" one time in the past and that was the only time I ever heard him speak. He hasn't spoke since. I used to question myself if I really did hear him say "Mama" or not and know in my heart that he did.
Big Brother has been into football so much this month, he's really interested! I was very surprised because he has almost always disliked sports and would rather do "a science experiment." He changing big time. In the afternoons and on weekends I take Big Brother to practice with a group of children who is his age and about the same size. His coach has been great. He's patient, encouraging and "awesome" as Big Brother says. This pop warner group is a group of boys from our neighborhood. It's a rough sport and Big Brother loves it! I really believe he releases alot of his frustrations through football. All the children wear protective gear always. Big Brothers coach says that football is safer than soccer, I was so surprised. Big Brother is loving football and is doing well in school.
"Ad-Man" Adam is also doing well. He has really taken an interest in painting with a paint brush. He gets totally lost in painting and is mesmerized by the colors. He mostly paints lines and swirls and they are beautiful in my book. We have been rewarding Adam with "paint time" when he is being such a good guy. He flaps and squeals when he knows its "paint time." He has been getting along with the boys very well. Big Brother and Adam barely notice each other and keep their distances. Big Brother loves being with Adam cause he's older but I kinda think Big Brother likes the idea of being able to help Adam. This morning as we were heading out the door Big Brother stopped and tied Adam's shoes for him. I really touched my heart because Big Brother did it without being asked too. Those are the best moments. I know some folks may feel that when their child has a disability it makes it miserable for the children who are Neurotypical. In our case, in our family I have seen Big Brother grow into a caring, loving and compassionate young man. He has learned so much from having two disabled brothers. (Adam is just like a brother to the boys even though he's actually my little brother.) I love how all the boys are learning so much from each other and I wouldn't want it any other way. How could I?
We hope all of you and your beautiful kiddos are well. We will be stopping by and catching up soon!