Hi Bloggers,
It's been awhile since I've blogged, been so darn busy with back to school stuff and I had surgery. My Gallbladder was removed, I had a stone in my bile duct and it nearly killed me (pain wise anyway.) I am still recovering and had my staples removed last week. It was two surgeries, one was down my throat to remove the stone in the duct and the other was abdominal. I have been one slow moving Mama and thank God that I had Big Brother as my HUGE helper. While I was recovering I really thought the change would upset Adam and KC tremendously. Guess what? Somehow they sensed I wasn't feeling well and never had a melt down or pinching from Adam. I had only one day to prepare for the surgery so Tacey our helper and I prepped the boys with PECS. It worked wonders! When I got home I let the boys see my staples and all of them did look. I think that also made a difference. Big Brother was disappointed that I couldn't bring the stones home. They were sent to the lab :( Yuck!
All my boys are back in school and doing well. KC had one hair pulling incident at therapy and ripped a total bald spot at the top of his head so we had to shave it yet again. Just when we thought we had the hair pulling beat :(
Ad Man Adam is now shaving with help. I can't believe it. I mean gosh he's not my little brother no more, he's my more grown up little brother. My Mom would be so proud at that strides he is making. (Forgot to mention) after surgery I couldn't get up from a sitting position without help. Adam was in the living room and I extended my hand to him and said, "help me Adam, I can't get up I'm hurt." I swear to you I could not believe what happened next. He stood their looking off as if not to hear me, I started to put my hand down when he held his hand out for me to grab! People can you believe it? He not only extended his hand he pulled as I pulled his arm he pulled back! Yes I cried like a baby. Gosh I love that kiddo!
I used to collect PEZ dispensers as a kid and loved the candy that came with the dispenser as well :)
On a recent visit to KC's Developmental Ped. the nurse working their suggested PEZ candy as a treat (for an ABA incentive).
What's even better they are Gluten and Allergen Free hooray!
The only not so good thing about the dispensers he isn't coordinated enough to load it. Still he loves them even though Mom has to help.
We have been using the candies in his ABA program and he's doing great, (to him they are heaven and worth working for!)
So far he's collected 6 dispensers.
The part I love best is that it's something I loved collecting as a kid and to see my son 'collecting' them too is cool. Maybe I'm not so old school after all?
Big Brother has been playing football and loves it! He's changing so much. He used to be very serious and into Science stuff, but now he's into football. I have also noticed a huge change in how he wants his peers to see him. I am used to holding Adam and KC's hand wherever we go. Me being in the middle in case Adam has a pinching fit. On an outing I had just K.C. and Big Brother as Adam was in his after school Habilitation program. I tried holding Big Brother's hand and he pulled away. I asked him, "what's wrong?" He said, "Mom I'm not a baby anymore and not Autistic." I let him know straight away that I hold his hand cause I love him. Still I see him pulling away especially in front of his football buds. Makes me cry. I am glad that K.C. and Adam will let me hug them, hold their hands and never pull away. Who says Autistic kids can't show affection? I would say they are more affectionate than Big Brother right now! Both boys are non verbal but their body language says it all. My husband doesn't like that I treat K.C. and Adam "like Toddlers." I tell him, "there's nothing wrong with loving your kids at any age and any time."
That includes hugs and kisses from me. Adam went through a very hard transition when Mom died. He needed the extra attention and it hasn't been that long. Adam remembers. He has his favorite photo of Mom in his backpack and he never takes it out or tears it up. I'm very blessed to have two Autistic boys and one non Autistic kiddo.
Hope you are all well and your kiddos are doing super!
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12 comments:
*sniff*
Great post! I'm so proud of Adam and KC reading through this entry. How amazing is that!
Hello,
Wow that was a road to travel. I do hope that the healing comes quickly for you Sounds like the boys are all doing well.
This year we started a new code word at the buss stop.
"SEE YA" = I love you. It is cool to be able to say in in a way they choose to receive it without the harassment of peers.
Hey Tina, I was starting to worry and now I see I was right, but Thank G-d you're recovering well and what gifts you got along the way! Overall your post just exudes optimism and good feeling, even as it's hard to see Big Brother growing up. As we come up to the Jewish New Year (just a month away) my blessing to you is that you will always see the good, feel it in your bones, and the not good will just be marginal to you. May you always have strength and insight, and may you always feel so good about your boys! Much love.
I think they're all doing marvelously, yours and mine and just about everyone else I visit. Who thought we'd all have come this far so soon [even though it's taken quite a while if you know what I mean!]
Cheers
Glad to read you are on the mend after surgery. Whew.
You must be so proud of ALL the boys; they are all growing and changing in so many ways —big ways. It's both exciting and challenging to find the balance between holding on and letting go, no?
Broght tears of happiness to my eyes for you. So pleased to hear how well they are doing. Hope you recover well.
take care of yourself. Sounds like the boys are making tremendous progress!
I always love to hear from you Tina- your posts always touch me. I agree about autistic children being more affectionate. It might take them a little longer, but now Henry (almost 10) tells me he loves me all the time. I love it of course, and I love to hold his hand- hope he never outgrows it!
Take care- you are doing an awesome job, as always!
Glad to hear all the boys are doing good. I had my gallbladder removed when Sara was a baby, I had over 100 stones. Feel better soon!
Send me a message some time, I have a question for you about one thing that you wrote about.
I am so glad that you are doing well and recovering from your surgery. I truly understand what you mean about BB not holding your hand. Griffin still lets me hold his but I dread the day when he doesn't want me to anymore. It will be a very sad day indeed.
It is so nice that Adam and KC still let you hold their hands. BB is really growing up so fast and I am glad that he loves football, that will be a great outlet for him.
We love you dearly and send big hugs!
Tina, hopped over after seeing you on my blog. Thank you for being transparent and open about your life with autism. I have already learned alot just reading your last few postings.
I am so glad to hear your surgery went well. I will pray you will recover quickly.
Your boys are absolutely darling.
Blessings*
I swore that I commented on this!
Hope that you're starting to feel better. I laughed at the Pez candy because we used it all summer for incentives during his summer school work!
I loved hearing that Adam helped you!
Let Big Brother know that all mamas want to hold hands, no matter what age! :-)
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