Monday, March 30, 2009
(Yes, that is a frozen food dinner he's eating, thank God for frozen food every now and then, especially on hectic days.)
Yep, I knew all those trips to the skate park would come back and bite us one day...three days ago to be exact. I take Big Brother to the skate park once a week, sometimes twice for his, "fun day." He's a skateboard junkie.
Things didn't go too well for him that day at the park. Somehow as he was going up a very high ramp, he didn't gain enough momentum to make it up and I watched in horror yes horror and thought to myself, "oh God this is going to hurt." As he tried to reach the top he knew he wasn't going to make a quickly turned the skateboard to head back down but turned to quickly and fell all the way down onto his head with his leg slamming down behind him. I was already down into the skate area running to him as kids started gathering asking him if he was o.k. He wasn't getting up so I knew it was bad. We tried to pull him to a standing position but he couldn't put any weight on it. I piggy backed him to the van, went home, picked up his insurance card and money for the co pay (gosh co pays suck) noticed K.C. and AdMan were doing fine with our helper friend and we left.
To make a long story a bit shorter, he broke one bone in his foot. We went to the Ortho doctor this morning and got a permanent cast. Why the ER gave us a weird cast I have no idea. I am lad that we went to the Ortho cause he knew what he was doing. So Big Brother will not be skating for a month.
At home life has been very difficult and busy. Our helper friend is staying full time to help me with all the boys. It's weird saying that cause poor Big Brother hardly ever needs help bless his heart. I feel so bad for him. He loves playing outside so much. K.C. and I did pull him around in the wagon yesterday. He did get some fresh air. K.C. and Adam have been in a sort of cranky moods cause of the change. K.C. spent nearly half the day trying to tear his cast off and I spent most of that day trying to stop him and distract him. He got so mad his nose was running his hair was full of sweat and he was so confused and seemed terrified. He did finally give up. Big Brother gives his cruthces to K.C. when K.C. approaches him. K.C. likes the crutches thank goodness.
Well I am off to bed, it's midnight here. Long day, need rest. Nighty.
Thursday, March 19, 2009
I can't believe it's 90 degrees here. Too soon for me. Big Brother asked if we could go swimming yesterday and I agreed. He really didn't swim all that much but he did lay in the sun alot. K.C. sat at a table eating his snack he brought with him. He was such a good boy at the pool.
Last night as I was up with K.C. watching him play because he refused to lay down, I heard something I couldn't believe. K.C. got tired eventually and headed for the couch. When he's falling asleep he's always chattering and making noises. He was doing the same last night and I was smiling through the whole thing cause his little noises can be funny. Then after a few more noises I heard a "pwease." Yes, I really heard it I DID! I wasn't asleep or falling asleep. He said, "pwease" with a w sound. His eyes were shut and he was half asleep. My jaw dropped opened. I clapped quietly by myself and sat down to listen some more. The rest of his noises were just noises, but I heard him say, "pwease." I wish my Mom were here for me to call and tell her. As I drove the boys to school Adam rode in the front seat with me. Big Brother rode with K.C. I let them all know what I heard cause I had to share it with someone! I told K.C. he said it when he was half awake and half asleep. I bet he was having a dream about home or school and was needing something and said "pwease" in his head but it actually came out in his half awake half asleep state. I will be listening more every night. Wow is all I can say!
There is a little typical boy inside there. He thinks just like we do but can't get it out. I totally feel it.
I had to share this and document it in his baby book. Well it's turned into a journal after the baby book stopped at 5 years old. I once thought I would never be able to wrote down his first word ever. Now so far we have heard, "mama, up and pwease." The weird thing is we have only heard the 1 time and never again. Hopefully we will hear them more!
Thursday, March 12, 2009
Mr. Sleepy Head. His life has been very busy these days, it's no wonder he conks out so quickly.
K.C. has to have everything perfect. When we go somewhere he has to bring 3 or 4 favorite objects from home with him. When we are in the car he puts his things down just right and God forbid they get touched or moved, he will lose it. I just wonder why he insists on taking these things with him if they are a great source of frustration. He won't leave the house without his, car, toy cell phone, food item and drink with a straw. I guess it's o.k?
Yesterday Big Brother was outside riding his bike with the neighborhood kids. I can see them from the window trying to jump a mini ramp a kid brought. There were roughly 16 kids out there. The youngest looked 4 and the oldest 14 or 13. I went out to check on Big Brother (also to let the other kids know I'm watching and they had better not be mean to B.B.) K.C. walked with me. Some of the kids asked B.B., "who's that boy with your mom?" "Can he play?" B.B didn't even answer, he just rode off. He gave me a quick look and left. This is the very first time I could see in Big Brother's face that he was ashamed. I knew it right away. I took K.C. inside quickly. I don't know why but I was angry and hurt at B.B. I let him play a little longer and then called him inside. He was quiet, he knew I was disappointed. At dinnertime I figured we'd make tacos so that he could help. He always grates the cheese and washes the vegetables. We started talking. I asked him if he felt embarrassed by K.C. He said, "yes." Then said, "only because if K.C. makes a weird noise and they know he's Autistic they will make fun of me every chance they get." These are the only children in the neighborhood for him to socialize with. He likes these kids so I am kinda at a, "not sure what to do moment." I have noticed that Big Brother is changing a lot. He wants to be even more independent and gets embarrassed when I hold his hand or hug him in public. I guess he's getting older. I can say that I am surely thankful K.C. lets me hug and love on him all I want. He doesn't worry about being embarrassed. Two boys, completely different. I am starting to wonder if I should make friends with Autism families and find an NT sibling of an Autistic child that Big Brother can connect with. I just don't want it to be about K.C. and Autism all the time. It's not fair to B.B. I guess I have alot of thinking to do. One thing is certain. I am not going to keep K.C. inside just because of some kids who are jerks. He has a right to play just as they do. If I hear them make fun of K.C. I will come unglued. I know in my heart that K.C. understands everything that is being said around him. He just can't show it.
K.C. has been going to habilitation everyday. He's doing well. He likes the art center the most and I swear he almost drew eyes and a smile! I could see it! There are also group activities, he hates group time but has his hab person sit through it with him. Hopefully he will learn to like it.
Ad man Adam is great. I bought him an IPOD and he loves it! He's always wearing it and if you were to glance at him he just looks like a teen guy with an IPOD. You know, just one of the guys. I'm really happy that he likes it. He picked pink. What is with the color pink? I took K.C. to get new shoes and put three pairs in front of him and he picked DC soes that were pink. I tried to take the pink ones away and he had a fit. We got the pink ones because he likes them. Pink can be for guys too can't it?
I am doing better. Not as tired anymore now that the boys are going to Habilitation. I can get tons of things done while they are away and can even sleep! I was scared at first to leave them, the trust factor is huge with me. Everyone around me kept telling me to try. I finally did and I have a good feeling when I do drop them off and pick them up. They are happy there and have had better coping skills that I can notice already. I should have done this along time ago.
We hope you all are o.k. and we are sending a very big hug to Nik and his Mama. Feel better soon Nik!