Wednesday, April 23, 2008

My Mother

My Mother passed away last night. She has had many health problems but I never thought she would go so suddenly. The Shivah begins today and I am going to pick relatives up from the airport, some are coming from Illinois and some from Israel. I miss my Mother so much. There was so many things I should have told her but can't cause she's gone. Growing up my Mother always said, "you have to take care of your little brother if anything happens to me." "He's you brother, he's family." My Dad has so many health problems as well. He won't be able to care for my brother. My brother will be living with me and the boys. I don't know if I can handle it but have to no matter what for my Mother. My brother is self injurious and profoundly Autistic. Having two kids with Autism and Big Brother will be the hardest thing I have ever had to do. I am scared to death. My brother is a teenager and he's a strong guy but still like a 4 year old. He has a alot of help and I have to start gathering all his therapists names and try to work out having two take kids to therapies which scares me cause everything is overwhelming. How will I keep homeschooling K.C.? I am trying to to think ahead because already my brother knows things have changed and K.C. knows everything is different, K.C. has been hard to handle with so many changes, it is hard, I know he's feeling sad and confused just like all of us and so is my brother. Big Brother is scared to see his grandma one last time today, my Daddy hasn't left my mother since last night and will stay with her til she is buried today. Big Brother has picked out a beautiful rock to place on top of where she is buried. Please pray for us, we need strength, we need all of your thoughts and prayers. Please let your loved ones know how much you love them and how much you need them. My Mother and I didn't get along very well all the years and I just wish I could tell her I am sorry and I love her.

Saturday, April 05, 2008

After 3 weeks and 2 days.....

After 3 weeks and 2 day of practicing with his ABA teacher, K.C. is an official bike rider! I never, ever thought it would be possible. Could my severely Autistic child who has no language do something a complexed as riding a bike? The answer is a big, "YES!" K.C.'s ABA teacher and I have been going outside with him and his bike each sessions through each week. We got him to sit on the bike fairly easily but could not get him to pedal or "push" with his feet. I got on my knees beside him and manipulated his feet each and everyday. His ABA instructor came up with a better idea, to stand away from him and hold his super favorite video in the air while he sat on the bike. I didn't let him get off the bike to run to get the dvd. Instead I manipulated his legs each time. Some days he was totally ticked off and wouldn't go near the bike. We just kept at it for three weeks, two days. He finally pushed his feet to get to his dvd! We cheered him on each and everyday even for the tiniest attempts, I really believe it kept him motivated to learn.

Now we have been riding (Big Brother and K.C.) through our neighborhood with me along side of K.C. He doesn't know about any safety rules such a the stop sign or looking for cars at all. Maybe it will come with time, I have printed stop signs off the Internet and we are working with his ABA instructor on that.

I am still amazed, I never thought this was even possible at all. Lately K.C. has proven everyone wrong. I am thrilled. It is hard work but just look at him go! He's focused and looks relaxed. I cheer him on and I know he hears me but he doesn't smile back, he's very focused on riding. The best part is that he has no time to stim. His hands have to be on the handle bars and his feet moving. Big Brother is totally happy that he, "has a friend to ride with!" He really feels very happy.

Our inspiration is Charlie from, This young man is also Autistic and an excellent bike rider. He's such an inspiration, I'll admit had it not been for me reading about Charlie and his bike riding and Autism I may have never thought it possible for K.C. Thank you Charlie for being such an awesome kiddo!

This is K.C. riding his bike like a pro after 3 weeks and 2 days!

Now if we could just get him to wear a helmet!